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pinkribboneffect

If I knew then...

Updated: Nov 19, 2023

If I knew then, what I know now, my Breast Cancer journey would have been a little smoother. If only I had a list of things I'd need or set of directions for that time in my life. That's why I've started this non-profit-to do for others what others could not do for me. Here's what I learned I needed after my double mastectomy:

  1. Drain holders. These things hang from you and are ugly, awkward, & uncomfortable. Having a pouch to put them in really helps your quality of life. Safety pinning them to your clothes for lack of a better word, stinks.

  2. Seatbelt pillow. Sure, bunching up a sweatshirt can do the trick but it's not the same comfort a small pillow can provide. You may even want to use the pillow for sleeping with after a while-after you've healed, it's nice to have a support in between.

  3. Arnica. This gel really helps with soreness & bruising. It's a natural substance used for treating aches, pains, and bruises. I found it most helpful after fat grafting from the stomach.

  4. Tylenol. The painkillers really hurt the digestive system. When the pain is tolerable, go to Tylenol!

  5. A compassionate hair dresser. You won't be lifting your arms for a few weeks (took me 5) to wash your hair. And if you are by yourself (or have a cruddy mate) you'll want to get your hair washed. Let your hairdresser know (if you have a steady one) or find one before surgery. This is a gamechanger when it comes to feeling "normal."

  6. Button down shirts and PJs (one size larger than normal). Again, you can't lift your arms and putting on shirts will be nearly impossible and definitley painful. You may find yourself only wearing them for this journey, so don't worry about going inexpensive. I purchased a lot of button downs from Kohl's and Old Navy that were perfect. The feel of material on your skin will be quite strange and at times unbearable.

  7. Zip front sports bras. These give the best support and are comfortable. I recommend Under Armour zip up front sports bras! There are fancy ones out there too (Soma, Victoria's Secret, etc.)

  8. Pre make meals or organize a mealtrain for at least three weeks. Grocery shopping is tiring and you won't be able to lift ANYTHING.

  9. Deep breaths for all the weird sensations you are going to experience. Nerve regeneration is an amazing process in our bodies. You will feel tingling, sharp pains, randon spurts of "electricity" that I like to call zingers. Just know, it's part of the healing process and that too shall pass.

  10. If you are having to do hormone therapy (specifically Tamoxifen) get ready for drenching hotflashes. A small handheld fan will be paramount for your sanity. Put away the silk and cotton blouses because you are going to sweat right through them. Don't even bother with sweaters. You are now a 'layering professional." You will have to put a bit more thought into your wardrobe. Button downs, zip up sweat shirts, & poly/spandex blends are life changers.

These are "[not] a few of my favorite things," but they were essntial to piece of mind!

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